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The Huesca association Izas, the pea princess, together with three French women and an American, manage to give an important boost to research into gliomatosis cerebri.
Behind the names of Izas, Franck, Anna, Mathys and Nina are the stories of five children from Spain, France and the United States who died very quickly from gliomatosis cerebri (GC), a rare type of especially aggressive brain cancer that does not It has a cure. In children and adolescents it has an average life expectancy of 14,5 months from the first symptoms.
Their names gave life to five associations created by their parents in the last eight years, which have now raised 300.000 euros to finance the first research project on the disease that will be developed internationally over the next three years between centers from different countries. Their deceased children, others who were also taken by GC and those who will come are the impetus for these associations to fight to investigate this type of cancer that spreads through the brain like a "spider web."
The scholarship was published just now a year ago, as one of the initiatives that emerged after the III Congress for Research into Childhood Gliomatosis Cerebri, held in Barcelona in 2019 with the assistance of researchers and families. Despite the delays caused by the pandemic, the grant has just been awarded to the project titled 'Targeting cellular connectivity in gliomatosis cerebri' led by English researcher Chris Jones, from the Institute of Cancer. Research (ICR) of London, which has been dedicated to research into this glioma for more than five years.
He will work in collaboration with researchers Mariella Filbi, from the Dana Farber Cancer Institute in Boston; Mara Vinci, from the Ospedale Pediatrico Bambino Gesù in Rome and David Castel, from the Gustave Roussy in Paris. Mónica Sarasa, from the Huesca association Izas, the pea princess, explained that "eight years ago there was hardly any research or data on gliomatosis cerebri." "We are proud to have managed to launch this scholarship and for the quality of the projects presented, as recognized by the evaluators. It is also a reflection of the union of the international community to promote research into gliomatosis cerebri: associations of families that are marked for the rest of their lives alongside brilliant scientists who have been involved with us for years, researching and taking an active part in our congresses," he added.
The research project will be financed by these five associations: the Huesca Izas, the Pea Princess (from which the proposal to launch this scholarship arose), the French Franck, un rayon de soleil; Mathys, a rayon de soleil; and Nina, a rayon de soleil; and the American AYJ Fund. There is currently an international forum with more than 60 families created in 2013, but there is no official data on the number of people affected in different countries. The disease is underdiagnosed, it is especially confused with different encephalopathies. In Spain, for example, it is estimated that statistically there should be about 5 cases a year, but they are not diagnosed.
