World Rare Disease Day Aragon

On March 7th at 16.30:XNUMX p.m., and on the occasion of World Rare Disease Day, the Aragonese Institute of Health Sciences (IACS), in collaboration with the Spanish Federation of Rare Diseases (FEDER) and the Government of Aragon, is organizing this event in Aragon to raise awareness of the reality of patients and their families, as well as the challenges faced by health professionals in diagnosis, treatment and research. Through presentations and discussion panels, the latest scientific advances, access to innovative therapies and the importance of coordination between the different levels of care will be addressed. The aim of this event is to create a meeting space for professionals, patients and associations, where they can share experiences, learn about the latest advances and reflect on how to improve the care and quality of life of those who live with these pathologies.

This event is open to professionals, patients, family members and anyone interested in learning more about rare diseases and how we can improve the care and quality of life of those who live with them every day.

Program

• 16: 30 h: Reception assistants.
• 16: 45 h: Opening.
• 17: 00 h: Rare Diseases Strategy in Aragon, vision institutional
• 18:00 h: Patient Testimony.
• 18:10 h: Rare Diseases Strategy in Aragon, healthcare vision
• 19:10 h: Closing of the day.

Prior registration is required to participate in this event.

Given that the capacity of the room is limited and in order to facilitate the organization of the event, we kindly ask you to confirm your participation before March 5th.